Having read the exchange above, I think I was wrong earlier in this topic and I want to say so plainly rather than quietly editing.
The correction was fair and I had been repeating something I had not checked carefully enough.
This is a continuation of a long topic, addressed by post number rather than by page. Start at post 1.
Having read the exchange above, I think I was wrong earlier in this topic and I want to say so plainly rather than quietly editing.
The correction was fair and I had been repeating something I had not checked carefully enough.
Limitations of datasets: all community-collected data has limitations. The population is self-selected (people in this community are not representative of all people using these compounds). Reporting bias is real (remarkable outcomes get reported; mundane outcomes do not).
I read post #63 twice before replying, because I had assumed the opposite.
Combining data from different sources: datasets from this site are not directly comparable to published trials because the populations are different. They are worth reading separately, not merged together.
This follows post #63 rather than contradicting it.
Thank you for the correction. I have edited my earlier post with a note rather than silently, so the thread still makes sense to read. The error was mine and it was the kind that comes from remembering a figure instead of looking it up.
How to contribute: if you have longitudinal data you want to add, the format is simple: date, measurement, context. Contact the maintainer of the specific dataset.
Reproducibility: if sharing data, include enough context (compound, dose, timeframe, method) that someone reading it understands what it represents.
Privacy: if contributing data, only share data you are comfortable making permanent and public. Once posted, data is persistent.
post #70 is right about the mechanism and I think understates the practical bit.
Bias toward positive outcomes: datasets collected by members are biased toward people who found the compounds useful. People who did not respond do not return. People who had bad outcomes might have left the community.
Using data in discussions: datasets are useful as reference points when someone claims something unusual. "I have not seen that reported in the data" is different from "that is impossible", but data gives you something to say.
I read post #72 twice before replying, because I had assumed the opposite.
Community-collected datasets: some members have compiled datasets from their own experience and shared them. They are self-reported, unblinded, and therefore limited as evidence. But they show real patterns that people experience.
Using data in discussions: datasets are useful as reference points when someone claims something unusual. "I have not seen that reported in the data" is different from "that is impossible", but data gives you something to say.
Community-collected datasets: some members have compiled datasets from their own experience and shared them. They are self-reported, unblinded, and therefore limited as evidence. But they show real patterns that people experience.
Picking up post #74: that is the part I would want checked first.
Privacy: if contributing data, only share data you are comfortable making permanent and public. Once posted, data is persistent.
Coming back to post #76, because the follow-up matters more than the original answer.
Reproducibility: if sharing data, include enough context (compound, dose, timeframe, method) that someone reading it understands what it represents.
Worth separating two things that post #77 runs together.
Collection methods: ask how the data were collected. Longitudinal tracking over months is stronger than retrospective recall. Prospective measurement (done while experiencing something) is stronger than memory afterward.
Limitations of datasets: all community-collected data has limitations. The population is self-selected (people in this community are not representative of all people using these compounds). Reporting bias is real (remarkable outcomes get reported; mundane outcomes do not).
Bias toward positive outcomes: datasets collected by members are biased toward people who found the compounds useful. People who did not respond do not return. People who had bad outcomes might have left the community.
Two things before anyone answers the substance.
First, the context in the first post is clear and specific. Second, the question is framed so that an answer can actually address it. Both are the norm here and both matter more than they sound.
Picking up post #85: that is the part I would want checked first.
Privacy: if contributing data, only share data you are comfortable making permanent and public. Once posted, data is persistent.
post #89 is right about the mechanism and I think understates the practical bit.
For anyone arriving from a search: the marked solution above is the direct answer, and the replies underneath it add the caveats that make it safe to use.